Family Education Weekend
Jun
20
to Jun 21

Family Education Weekend

Family Education Weekend: Uniting the Bleeding Disorders Community

Join us for an incredible Family Education Weekend designed for all families in the bleeding disorders community! This weekend is your opportunity to connect, learn, and grow alongside others who share similar journeys.

What to Expect

  • Educational Sessions: Gain valuable insights and have your questions answered by leading experts in the field of bleeding disorders.

  • Kids & Teen Activities: While parents participate in sessions, kids and teens will enjoy engaging activities tailored just for them—fun, learning, and making friends!

  • Networking Opportunities: Meet other families from the community, share experiences, and build lasting connections.

  • Community Building: Strengthen bonds with your community through shared meals, group discussions, and interactive activities designed to bring everyone together.

This weekend is about more than education—it's about creating a sense of belonging, fostering friendships, and empowering families to thrive. Whether you’re new to the community or have been part of it for years, this event offers something for everyone!

Let’s come together to support one another and celebrate the strength of our community.

View Event →
Camp Valor
Jul
28
to Jul 31

Camp Valor

Camp Valor is a transformative summer experience for children and teens with bleeding disorders. Set in a supportive and fun-filled environment, campers enjoy outdoor adventures, creative activities, and the chance to build lifelong friendships.

With medical staff on-site, Camp Valor provides a safe space for kids to gain confidence, learn life skills, and connect with others who share similar experiences. It’s more than a camp—it’s a place where courage, community, and unforgettable memories come together.

If you’d like to volunteer at Camp Valor for 2025, please apply at the link below.

Camp Valor 2025 Volunteer

View Event →
C.H.E.S. LadyBugs Conference
Aug
8
to Aug 10

C.H.E.S. LadyBugs Conference

  • Utah Hemophilia Foundation (map)
  • Google Calendar ICS

The LadyBugs program empowers women ages 16+ with SHEmophilia who are diagnosed with a clotting factor/platelet deficiency, care for someone, or carry any other bleeding disorder. The program’s goal is to assist women to find their voice when it comes to decision making about the health of themselves and their loved ones.

Our goal is to provide education about medical developments, advocacy skill building, stress management techniques and more to encourage women to recognize that their health is equally important.

The UHF is honored to host this 2025 event.

Location to be decided.

View Event →
Females & Bleeding Conference
Sep
26
to Sep 28

Females & Bleeding Conference

  • Utah Hemophilia Foundation (map)
  • Google Calendar ICS

The FAB Conference (Females and Bleeding) is a one-of-a-kind event dedicated to addressing the unique experiences and challenges faced by women and girls with bleeding disorders. This empowering conference brings together individuals, caregivers, and experts to share knowledge, provide support, and celebrate the strength of females in the bleeding disorders community.

What to Expect

  • Educational Sessions: Learn about the latest advancements in care and resources tailored specifically for women with bleeding disorders.

  • Empowering Discussions: Engage in open conversations about health, advocacy, and living confidently with a bleeding disorder.

  • Connection & Support: Meet others who share your experiences, build lasting friendships, and strengthen your support network.

  • Fun Activities: Enjoy relaxing massages, creative crafts, interactive games, something active, and entertainment like comedy shows that bring laughter and joy to the experience.

The FAB Conference is a safe, welcoming space where women and girls can come together to learn, share, and inspire one another. Whether you’re looking for education, connection, or empowerment, this event is for you!

Let’s celebrate the resilience and strength of females in the bleeding disorders community.

View Event →
Teen Scholarship & Paint Night Activity
Oct
11
4:30 PM16:30

Teen Scholarship & Paint Night Activity

Calling all teens! Join us for a special evening designed to help you prepare for your future while having some creative fun.

What’s Happening?

  • Scholarship Workshop: Get expert guidance on how to navigate scholarship applications, write impactful essays, and stand out as a candidate. Whether you’re just getting started or need help polishing your applications, this workshop is here to support you.

  • Paint Night: After the workshop, unwind with a relaxing and fun paint night! Let your creativity flow as you create your own masterpiece and connect with other teens in the community.

This event is the perfect mix of productivity and fun, so don’t miss out on the chance to build your future and make new memories!

Time and location to be announced!

View Event →
World Hemophilia Day Celebration
Apr
16
6:00 PM18:00

World Hemophilia Day Celebration

  • Gardner Village - The Gathering Place (map)
  • Google Calendar ICS

World Hemophilia Day is almost here and we hope to see you! Join us for a family-friendly event filled with hands-on activities, empowering education, supportive conversations, and more as we build on this community’s incredible bond.

RSVP today to join us for hands-on activities like:

• Beaded bracelet making

• Instant camera selfie stations

• DIY photo frames

• Photo prop crafts

• Conversations and connections

RSVP: https://forms.gle/RdmqzyBr25XegfHBA

Sponsored by: Sanofi

View Event →
Bleeding Disorder Awareness Month Kick-Off Party
Feb
28
6:00 PM18:00

Bleeding Disorder Awareness Month Kick-Off Party

Join us for an evening of connection and celebration as we kick off Bleeding Disorder Awareness Month! This special event is just for members of our bleeding disorders community—a time to come together, enjoy great company, and get inspired for the month ahead.

Here’s what you can look forward to:
🍽 Dinner: Share a delicious meal with others in the community.
🎤 Presentation: Learn why raising awareness about bleeding disorders is so important and how you can make an impact.
📋 Event Info: Get all the details about activities, initiatives, and ways to get involved throughout Awareness Month.
🎲 Games: Relax and have some fun with interactive games for all ages.

This kickoff party is the perfect way to connect with others, gain valuable insights, and set the tone for an impactful Awareness Month. We can’t wait to see you there!

View Event →
Galentine's Day Party
Feb
7
7:00 PM19:00

Galentine's Day Party

Ladies, let’s celebrate Galentine’s Day with a fun and empowering evening dedicated to women in the bleeding disorders community! Women with bleeding disorders have long been overlooked, but it’s time to shine a spotlight on this vital topic. Whether you’re personally affected, supporting a loved one, or simply interested in learning more, this event is for YOU.

Come join us for a night of connection, education, and fun, featuring:
✨ Interactive Presentations: Learn about the unique challenges women face with bleeding disorders and the strides being made to address them.
✨ Small Vendor Market: Shop from local vendors offering unique products and services.
✨ Cookies & Soda Bar: Treat yourself to some sweet and fizzy indulgences.
✨ Games & Prizes: Bring your competitive spirit and win some fantastic prizes!

This is your chance to meet others in the community, enjoy a relaxing evening out, and leave with valuable knowledge and a few goodies in hand. Don’t miss this opportunity to connect, celebrate, and learn.

Grab your best gal pals and mark your calendar for this special event!

RSVP here!

View Event →