What is a bleeding disorder?
This term is a catch-all name for more than fifteen different disorders, including hemophilia and von Willebrand Disease, that prevent blood from clotting properly. These are rare, genetic disorders and are never contagious; but, can be very challenging when trying to live a healthy life.
Chapter Board & Staff
The Utah Hemophilia Foundation provides a broad range of services to individuals and families dealing with bleeding disorders. Because bleeding disorders are rare, individuals often feel alone. The UHF creates networking opportunities to bring people with bleeding disorders together for support and learning.
Scott Muir, Executive Director, UHF Staff
Scott has more than 20 years of experience in public, non-profit and private sector management, corporate communications, marketing, public relations, media relations, and community and government relations.
Before coming to the UHF, he was the director of the Eccles Dinosaur Park in Ogden, a consultant to the Gale Center of History and Culture in South Jordan, the Director of Marketing and Communications for an aerospace company, and director of Economic Development for Tooele County.
Scott has a Bachelor of Arts in Communications from the University of Utah. During his free time, Scott enjoys visiting Southern Utah, photography, and graphic design.
Jan Western, Program Director, UHF Staff
Jan has a Bachelor of Arts in Communications from the University of Utah with an emphasis in Public Relations. After working for state government, she wanted to give the non-profit world a try. She worked for the American Diabetes Association for four years and has been with the UHF for more than 14 years. (That means she likes it).
Jan is the proud mom of two beautiful girls, ages 16 and 13 and a loving wife to Dave – the most handsome man in the world. When not at the UHF, Jan enjoys spending time with her family, reading (which usually results in napping) and singing at the top of her lungs, much to her children’s chagrin.
If money grew on trees, she would use it to cure bleeding disorders, travel extensively around the world, and buy one of those nifty soda machines that has about 100 different flavor choices (but, let’s not kid ourselves, they would all have the same flavor – diet Coke).